SICKLE CELL DISORDER: Trust Fund Launched to Support Patients in Kano.

The Sickle cell community has made a giant leap of the launching of the Sickle Cell Community Trust Fund to support People living with Sickle Cell Disorder.

The Initiative was conducted on Monday in Kano with the support from Community Health and Research Initiative (CHR) and the Centre for Sustainable Development and Communication Initiative (CSDCI)

In her remark, the co-founder of the program Shema’u Adam Imam said the bold step taken is to provide a sustainable financial platform for cushioning the challenges of the fewer privileges sickle cell patients towards purchasing drugs, screening payments and sundry issues connected with the ailment.

“Some members within the Sickle Cell Community in Kano State are very much in plight grappling with difficulties of unable to settle hospitals bills and their daily routine drugs” she added.

Shama’u Adam further stressed that some patients have an acute complication that requires immediate medical attention, but procrastinates due to lack of financial capability to meet up their demand.

Hence, she pointed out that with such Initiative most of the Sickle Cell patients will regain optimism and continuing of keeping their good hope alive.

In his address, the Executive director of Community Health & Research Initiative (CHR) Dr Salisu Musa Muhammad cited that 95 per cent of Sickle Cell patients survive in U.S.

Adding that, this trend will also attain in Nigeria, by reducing the chances of prevailing challenges through ensuring routine checking, hand washing to avert infections and drugs accessibility without stress.

Earlier in his remark, Dr.Abdulhamid Isa Dutse of Aminu Kano Teaching Hospital, Kano says in view of the severe challenges daily suffered by the sickle patients, it is imperative for the lawmakers both in federal and state level, to individually give priority towards funding of health-based program of that will help sickle cell and other sundry patients of various money-consuming ailments in their various communities.

While declaring open the Trust Fund Account open Dr Aisha Gwarzo of Aminu Kano Teaching Hospital, Kano donated the sum of 200,000 Naira and pledge of giving 2,000 Naira as a monthly donation to the Sickle Cell Trust Fund.

While Hajia Maryam Sale, who emotionally and in teary-eyes narrated how she lost her daughter due to the sickle cell anaemia in 2017, gave a donation sum of 300,000 Naira.

The Launching of the Trust Fund was graced by the members of the academia, CSO, health sectors and various participants from NGO’s and health-related organisations.

Adamu Aminu, writes from Kano.